REAL PATIENT STORIES
REAL PATIENT STORIES
REAL PATIENT STORIES
I teach art activities and techniques to help people in their health journeys. I mostly lead cancer patients through art projects that are designed to de-stress and get them to explore something new that they would never have done without the guidance of an artist.
As an MS patient, I rely heavily on my own experiences when I am coming up with a project. The goal is always to help a patient lean away from their disease for a bit. I offer an ear for them to vent while making a fun project that I think suits their particular mindsets and abilities.
I have found so many people carry their own strength and work to persevere. We share a love for life that’s hard to ignore. Many patients have expressed that they feel relieved to spend some time with someone who understands the general struggles of having a chronic illness. They feel a sense of camaraderie, and, in turn, I also feel connected to people who go through so much for their health.
Note: Art-as-therapy is not the same as art therapy. I am not a licensed art therapist (these trained professionals are typically licensed in the psychotherapy disciplines, and they use the arts to treat patients in a clinical setting).
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Stuifbergen A, Becker H, Phillips C, Horton S, Morrison J, Perez F. Experiences of African American Women with Multiple Sclerosis. Int J MS Care. 2021;23(2):59-65.
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Okai AF, Howard AM, Williams MJ, et al. Advancing Care and Outcomes for African American Patients With Multiple Sclerosis. Neurology. 2022;98(24):1015-1020.
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Amezcua L, McCauley JL. Race and ethnicity on MS presentation and disease course. Mult Scler. 2020;26(5):561-567.
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Ingram M, Leih R, Adkins A, Sonmez E, Yetman E. Health Disparities, Transportation Equity and Complete Streets: a Case Study of a Policy Development Process through the Lens of Critical Race Theory. J Urban Health. 2020;97(6):876-886.
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Sohn H. Racial and Ethnic Disparities in Health Insurance Coverage: Dynamics of Gaining and Losing Coverage over the Life-Course. Popul Res Policy Rev. 2017;36(2):181-201.
Taylor J. Racism, Inequality, and Health Care for African Americans. The Century Foundation. December 19, 2019. Accessed April 16, 2023. https://tcf.org/content/report/racism-inequality-health-care-african-americans.
Taylor J. Racism, Inequality, and Health Care for African Americans. The Century Foundation. December 19, 2019. Accessed April 16, 2023. https://tcf.org/content/report/racism-inequality-health-care-african-americans.
The immune system uses many types of cells, including B cells and T cells, to help the body fight infections caused by viruses or bacteria.
B cells produce antibodies and stimulate other proteins. In MS, these can cause damage to the central nervous system.
T cells release chemicals that cause inflammation and damage. They also help to activate B cells.
A brain lesion describes the damage MS causes to any part of the central nervous systems such as the brain or spinal cord.
A Clinical Education Manager (CEM) is someone who can answer questions to help you feel more informed about your treatment. CEMs are Genentech employees and do not provide medical advice. Your healthcare provider should always be your main resource for questions about your health and medical care.
Know the feeling? Ask your doctor about starting or switching to 2-times-a-year OCREVUS ZUNOVO.
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