OCREVUS patient experiences
Meet a group of individuals living with MS, who share their experiences to bring more awareness about MS. Discover their journeys from before diagnosis through their treatment experience with OCREVUS. Keep in mind that every person's experience with MS and with OCREVUS can be different.
Teri, living with PPMS
I have a full-time career, but my job doesn’t define me. I have eclectic tastes and love to learn and travel. I took a knife skills class once, and fell in love with cooking. I’ve since taken several more cooking courses and expanded my repertoire. My husband and I love the outdoors and we take advantage of every second we can snowmobiling, riding ATVs, or walking. I am an avid reader and watch a lot of news. This is indeed a hodgepodge of loves, but, hey, that’s me; no definition fits me.
But one thing I have been known to do is bury my head in the sand and ignore clear signs. The road to my PPMS diagnosis was no exception. Over the course of three years odd symptoms would pop up here and there. Involuntary leg movements, stabbing pain inside my eye, burning nerve pain in my arm, numbness and tingling in my fingers, dizziness, difficulty concentrating, and balance issues all presented at some point, but they were never consistent, but once the symptoms got too severe to ignore, I finally saw a neurologist. Alas, I was diagnosed with PPMS, and at the time there were no approved therapies.
So, when OCREVUS became an option, I took the opportunity to speak to my doctor.
James, living with PPMS
The most important thing in my life is my role as a husband and a father. I have a beautiful wife and two amazing children. I spend time at home with my kids, playing games and teaching them the life lessons I’ve learned. I sing with them, and we watch a lot of animated movies. I know every lyric to every kid’s movie that has come out in the last few years. Peculiar things happen to me all the time, but I have learned that what happens to you is not as important as how you react to it. That’s a lesson that has come to mean a lot to me ever since I was diagnosed with PPMS.
In high school, I was a varsity athlete. I lettered in both cross country and track & field as a distance runner. In fact, I was the number one runner on my cross country team. I stayed quite active over the next few years, until I began to notice I would fatigue much faster than I used to. I would sometimes trip from dragging the toes of my right foot. It felt almost like I had weights on my ankle. When I exerted myself, my right thigh would shake. Needless to say, I never even considered that I, the varsity athlete, could have a serious medical condition, so when I saw the high res images of the lesions of my brain, I couldn’t believe it.
My neurologist approached me about OCREVUS. As I find ways to live life in this ”new normal” with my family, I enjoy seeing my daughter dance or sing or maybe even play soccer one day. I'd love to see my son play football or baseball. Being a husband and father is what keeps me motivated.
Important Safety Information
Who should not receive OCREVUS?
Do not receive OCREVUS if you have an active hepatitis B virus (HBV) infection.
Do not receive OCREVUS if you have had a life threatening allergic reaction to OCREVUS. Tell your healthcare provider if you have had an allergic reaction to OCREVUS or any of its ingredients in the past.
Michael, living with relapsing MS
Where I come from, they don’t call me Michael. They call me Big Un’ or Tiny. I’m known as the tough guy. I have been a team leader and senior master technician in car dealerships for more than 30 years, a volunteer fireman where I was awarded Fireman of the Year in my department in '97, a bar bouncer, a bodyguard for several top music artists, and a motorcycle rider. I have been referred to as one of the best vehicle technicians in the country and a motorcycle-riding fool. I command the room when I walk in. Don’t get me wrong. I’m not mean; just large and in charge.
When the doctor handed me a little piece of blue paper that read “Confirmed diagnosis of relapsing MS,” I felt like my friends and colleagues would look at me as a failure. In truth, I had no idea what relapsing MS was, and I didn't do any research because I didn't want to know what could happen to me.
After a few years of trying different treatments and several exacerbations, I knew I had to do something. So, I decided to give OCREVUS a try.
Martha, living with relapsing MS
I have one of the best jobs in the world. As a mobility intake
specialist at a non-profit organization, I get to help people live
fuller lives, which means I get to help people, like the elderly and
homebound get from point A to point B. There have been many times on
my journey with relapsing MS when I felt like I couldn’t get from
point A to point B myself, and times when I felt like giving up.
But, I am a passionate Latina mother, grandmother, sister, daughter, cousin, and friend. I’ve always loved going dancing but, above all, I love helping others. So, when I got diagnosed with relapsing MS, I was devastated. It broke my heart to think that I might not be able to do even the simplest things for others, especially my children.
After many years and a few treatments that didn’t work well for me, I decided to try OCREVUS.
Todd, living with relapsing MS
I’m the type of guy who stays on top of things. I like to be in
control, so I am proactive about taking care of myself. I eat healthy
and I exercise. Having spent a lifelong career providing medical care
and equipping hospitals with the latest medical technology, I never
thought it would be me on the receiving end of a diagnosis. Don’t
think that the irony of having had access to the first MRI machine in
the U.S. at the time, in light of my relapsing MS diagnosis, escapes
I have been married for over 30 years to a wonderful woman who has always understood and supported me. Together, we are a wonderful team. We have three children, and a total of four grandchildren.
I’ve often called relapsing MS “a sneaky disease,” because its symptoms aren’t always visible and they can arise when you least expect them. It was in the spring of 2008 when my sneaky symptoms began to surface. Forgetfulness, confusion, misplacing things, fatigue, heat sensitivity, and loss of vision all began to stack up to what I thought might be a brain tumor, but the MRI I had confirmed my relapsing MS diagnosis.
After a few years and a few different treatments, I decided to try OCREVUS.
As a good friend of mine and mentor says, “Every day is a holiday, every meal a banquet,” and I plan to enjoy every bite.
Relapsing MS: Thinking about your treatment options?
Download an education kit that can help you talk to your doctor about OCREVUS for relapsing MS.